Type 1 Diabetes

Parents Guide

Are you caring for a child with Type 1 Diabetes? Tips and resources for parents and carers to help your family live a safer, easier and happier life until we cure T1D.

Want to know more about Type 1 Diabetes?

Financial Assistance

Type 1 diabetes can be a financial burden on families but there is help available.

  • Insulin Pumps The Australian Government offers fully subsidised insulin pumps for eligible children under 18 years through the Insulin Pump Program administered by JDRF.
  • Health Care CardAll families with a child under 16 years can apply for a Health Care Card. The card allows prescription items and some medical services to be purchased at lower prices.
  • Carers’ AllowanceSome families may qualify for a fortnightly Carers’ Allowance payment, which is assessed by Centrelink on an individual basis.
  • National Diabetes Services Scheme (NDSS)Registration to the Federal Government’s NDSS allows diabetes supplies such as syringes, test strips and needles to be purchased at cheaper rates.
  • Continuous Glucose Monitors: the Australian Government is now providing access to fully subsidised continuous glucose monitoring (CGM) products, through the NDSS, to children and young people aged under 21 years who meet specific criteria. Refer to ndss.com.au/cgm and talk to your healthcare professional.

School

As a parent, you are responsible for informing the school administration of their diagnosis and providing the school with your diabetes management plan. It may help to connect the school with your treating diabetes team to ensure a smooth process.

As your child with T1D gets older, they will spend more time in and around school, involved in extracurricular activities and sports. A comprehensive and smart plan for how to deal with T1D at school is a must-have tool.

Playing Sport

Children with Type 1 Diabetes should be encouraged to play sport and exercise. Testing their blood glucose before and after exercise, and recording their food intake and type of exercise will help you to see the trends in their blood glucose levels. Knowing this, you and your child’s diabetes team can come up with a workable strategy.

 

Little Blue Book

People, organisations and places you need to know.

The Language of T1D

A list of all the commonly used T1D terms and their meanings

Peer Support

JDRF’s Peer Support Program is a volunteer network that connects people who have been affected by T1D.  The Program provides the opportunity to talk to someone who has been there, who can give practical help and advice.

 

Sleepovers

All kids love to sleep over at a friend’s place. This can make parents of children with diabetes especially anxious. Plan the stay and give the host parent(s) simple advice on meal requirements, timings and hypos. Make sure the family understands when and how to contact you. It’s also a good idea to talk to your diabetes team about an insulin plan for sleepovers.

Insulin Pump Program

The Australian Government’s Insulin Pump Program provides fully subsidised insulin pumps to low income families who have children (under 18 years of age)  with Type 1 Diabetes, improving access to life-changing insulin pumps. Since its inception in 2008, the program has provided over 1200 subsidised pumps to children with T1D.

Welcome to the 'Teen Years'

Type 1 Diabetes takes on a new life in the teen years. Whether you are dealing with a new diagnosis or continuing a long-running relationship with T1D, everything that makes the teen years unique may complicate the disease structure. It takes patience, adaptation and sometimes a lot of help and support to get through those years. 

A taste of freedom

For teens with T1D, these years of beginning to feel the power of freedom can have an entirely different taste than they do for teens without diabetes.  Families that are managing T1D often find that communication begins to break down as a child enters the teen years. As much as you may raise your child with the mantras of “you can tell me anything” and “honesty is always a better choice,” the teen mind switches that off. Some teens might feel overwhelmed with being handed control over different aspects of their T1D. Discuss this with your teen and their diabetes team to come up with a plan of attack that encourages independence but ensures safety. 

 

Driving

It’s one of the life events that parents of teens with T1D approach with the most apprehension: letting them drive a car. To get a Learner Driver Licence in Australia, your teen will need a medical report to show that they are fit to drive. This involves a doctor checking HbA1c, blood glucose monitoring, eyes, frequency of hypos and awareness of hypo onset. You need to tell the licensing authority in your area that your teen has T1D and obtain a medical certificate every two years to confirm that they are fit to drive. More advice and tips can be found in our teen toolkit. 

Game Changer

Register for Clinical Trials and keep up-to-date on T1D research.






Progress

The latest T1D news and progress towards a cure. 





 

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