The Australasian Diabetes Data Network (ADDN)
The Australasian Diabetes Data Network (ADDN) captures clinical data from thousands of people living with type 1 diabetes on a single database, with the goal of improving outcomes for people with T1D.
Diabetes clinics and hospitals use clinical databases to capture health information from people with T1D. ADDN is a way of bringing together de-identified data from multiple clinics onto a single national platform, to foster collaborative research and improve clinical care.
The power of health data
There are 25 centres across Australia and New Zealand participating in ADDN, with data from over 16,000 people with T1D represented.
The ADDN database is used by researchers and health professionals to answer key questions about T1D and improve long-term health outcomes. The data in ADDN offers many possibilities for improving clinical care – researchers can see how T1D progresses over time, when complications most commonly develop, and how different models of care impact on outcomes.
ADDN forms part of an Australasian data ecosystem, linking health, demographic and administrative datasets to better understand health outcomes for people living with chronic conditions. This growing evidence base places ADDN in a unique position to evaluate the impact of major investments, such as the Australian Government Continuous Glucose Monitoring (CGM) program and the JDRF-administered Insulin Pump Program.
Supported by JDRF through the Type 1 Diabetes Clinical Research Network, ADDN is a collaboration between the Australasian Paediatric Endocrine Group, the Australian Diabetes Society, the University of Melbourne, and the many diabetes centres represented by the ADDN Study Group.
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