Juvenile Diabetes Research Foundation
Privacy Policy - December 2001
Introduction
Juvenile Diabetes
Research Foundation (JDRF) is a not for profit organisation whose
main aim is to raise money to help find a cure for juvenile diabetes.
A part of what we do requires the collection of personal information,
and in doing so we are committed to protecting your privacy. This
privacy policy will help you understand how JDRF collects, uses
and safeguards your personal information. This privacy policy is
based on the Australian Privacy Commissioner's National Principles
for the Fair Handling of Personal Information. If you have comments
or questions regarding this privacy statement, please contact: rgraham@jdrf.org.au
Collection, Use and Access to Personal Information
JDRF collects
personal information about donors, members and other individuals
connected to JDRF. We only collect personal information necessary
for JDRF's functions and activities.
The personal
information that JDRF collects may also include sensitive health
information as to whether you or a person to whom you are related
has diabetes. We will only ever collect such sensitive information
after you have given us consent to do so. This is the only form
of sensitive information that JDRF collects.
We may use the
personal and sensitive information we collect from you for the purposes
of processing requests you make of us; offering you products or
services; determining your likely interest in donating funds to
JDRF or in being involved in our volunteer network. We may also
use the information you provide to us for the purpose of contacting
you to ask you to donate funds to JDRF to help in finding a cure
for juvenile diabetes. Occasionally we will also contact you for
the purpose of informing you about third party projects or requesting
volunteers for a third party's research project, where those projects
are related to helping find a cure for juvenile diabetes. We do
not otherwise share the personal information we collect with any
other organisation except other JDRF branches, affiliates and chapters
or except where we are required to do so by law. From time to time,
we may compile statistical data from the personal information we
have collected. In these instances, the data will be aggregated
and depersonalised before it is disclosed to third parties.
Access to personal information and Data Quality
Wherever possible,
JDRF will provide you with access to the personal information that
we may hold about you. If you would like to request access to this
information, please e-mail agoodin@jdrf.org.au
or phone Alissa Goodin on 02 9966 0400 (ext. 205).
We take all
reasonable steps to keep all information we hold up-to-date. If
you identify that the information that we hold about you is incorrect,
please contact us and request an amendment.
Data Security
We are concerned
to provide a secure environment for your privacy. We take all reasonable
steps to ensure the security of the personal data we hold from such
risks as loss or unauthorised access, destruction, use, modification
or disclosure of data.
Anonymity
Where lawful
and practical, you have the option of not identifying yourself when
entering into transactions with us. We will let you know if this
is going to cause a problem (for instance if you are ordering products
from us).
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