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42 Queensland Children with Type 1 Diabetes to Meet the Premier
1 May 2006
Forty two children
with type 1 (juvenile) diabetes will make an emotional journey to
Brisbane on 11 May 2006 to meet Premier Beattie and their State
MPs, and ask for support in finding a cure for the devastating disease
they live with every day.
The children
are participants in the first ever Kids in the House Queensland
event, organised by the Juvenile Diabetes Research Foundation (JDRF).
Aged between 2 and 17, the children represent Queensland electorates
from Brisbane City to Barron River. They will urge Parliamentarians
to 'Promise to Remember Me' when considering new policies and funding
decisions for medical research. It is the first time children from
across the State will mobilise in such magnitude to raise awareness
of diabetes.
At meetings
throughout the day, the children will provide Queensland political
leaders with a personal account of their experiences of living with
diabetes, highlighting the devastating, life altering impact of
the disease and explaining in their own words why a cure is so critical.
"All children
deserve to lead a long and healthy life," said JDRF CEO, Mike
Wilson. "But children with type 1 diabetes experience years
of debilitating health problems from a disease that can shorten
their life expectancy by up to 15 years."
"Unlike type 2 diabetes, type 1 cannot be prevented or managed
by diet and other lifestyle choices.
"Through
Kids in The House, we want to help our political leaders understand
what a serious disease type 1 diabetes is and, by the end of the
day, we hope they will be committed to supporting policies and research
to fight and eventually cure it," he said.
The group will
be led by 10 year-old Rebecca Adsett, who was diagnosed with type
1 diabetes eight years ago when she was just two years old. Rebecca
will speak about how difficult it is living with diabetes, outlining
the challenges she faces every day.
"Sometimes
it's annoying having diabetes, and I would like to help people understand
how horrible it is to have it," said Rebecca. "They need
to know that insulin is not a cure. We need more research so kids
like me can live a normal life."
The children
will be accompanied on their journey by parents, siblings, friends
and scientists, including 2006 Australian of the Year, Professor
Ian Frazer.
A feature of the day will be a display of 1,500 syringes on Parliament
House Lawn, which represent the number of injections taken by a
person with type 1 diabetes over one year.
In type 1 diabetes
- the most serious and complicated form of the disease - a person's
pancreas stops producing insulin, the hormone that enables people
to get energy from food. To survive, people with type 1 diabetes
must take multiple daily injections of insulin and test their blood
glucose levels four or more times a day by pricking their fingers
for blood.
While trying
to balance insulin injections with physical activity and the amount
of food consumed, people with type 1 diabetes must constantly be
prepared for hypoglycaemia (low blood glucose) and hyperglycaemia
(high blood glucose), both of which can be life threatening. The
devastating long term complications of diabetes include blindness,
heart attack, stroke, kidney failure, nerve damage and amputations.
While usually
diagnosed in children, type 1 diabetes also occurs in adults. The
disease affects more than 140,000 Australians, with incidence increasing
every year. Every day another 2 people are diagnosed.
ENDS
For further
information:
Karolyn Andrews, Media & PR Manager, JDRF
Ph. 02 9966 0400 (x203) or 0403 787 077 | email: kandrews@jdrf.org.au
About JDRF:
The Juvenile Diabetes Research Foundation is the world's largest
not-for-profit supporter of diabetes research, investing $130 million
in the search to find a cure for type 1 diabetes each year. JDRF
was founded in 1970 by parents of children with type 1 diabetes,
a disease which strikes people suddenly, makes them dependent on
multiple daily injections of insulin to survive and at risk of devastating
health complications like blindness, kidney failure, heart disease
and amputation.
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