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Tears at Parliament House as Juvenile Diabetes Sufferers Tell
Their Stories
August 21, 2003
Over 120 senators
and MPs were left teary-eyed after an emotion-charged meeting at
Parliament House yesterday where 100 children with type 1 diabetes
appealed to parliamentarians to help find a cure for the deadly
disease they live with every day.
Led by 10 year
old Cassie Garvan from Sydney, the delegation of children at Kids
In The House were aged between 3 and 17 years and came from
all states and territories of Australia. The event was organized
by the Juvenile Diabetes Research Foundation.
Special guest
Prime Minister John Howard opened the Kids In The House
presentation in the Great Hall at Parliament House, at which MPs
and Senators learned how difficult it is to live with type 1 diabetes
and why a cure is so critical.
In his address,
Prime Minister Howard said that an event like Kids In The
House "brings home to the rest of the community the
sorts of challenges that young people who have juvenile diabetes
have to cope with and also the challenges of parents and others
who care for them."
Parliamentarians
were visibly moved after 8 year old Jeremy Metha from Melbourne,
15 year old Thomas Johns from Perth and parent of a child with juvenile
diabetes, Michael Clapham from Sydney, spoke of their tragic experiences
with this terrible disease and how it has affected their lives.
Thomas broke down in tears begging parliamentarians to please promise
to remember him, saying "I need your support, not your sympathy."
After the presentation,
Ms Sheila Royles, CEO of the Juvenile Diabetes Research Foundation
said "Through Kids In The House we wanted to
raise awareness of juvenile diabetes and ask the government to support
policies and research that will eventually lead to a cure.
"We're
thrilled with the support shown by the Prime Minister, Health Minister
Kay Patterson and parliamentarians. The children were able to explain
in their own words why type 1 diabetes is such a serious disease,"
she said.
"People
generally confuse juvenile diabetes with the more common type 2
diabetes, a lifestyle related condition that, in comparison, is
relatively easy to treat. Juvenile diabetes is a disease of the
immune system and it can't be prevented. People with juvenile diabetes
have to take 4-6 injections of insulin each day just to stay alive
and after 20 years with the disease they suffer severe health problems
such as blindness, heart disease, kidney failure and amputations."
Earlier in the
day, delegates and parents built an impressive display of 14, 600
syringes and 21,840 blood glucose strips on the demonstration lawn
at Parliament House. Opened by Senator Kay Patterson, Minister for
Health and Ageing, the "Diabetes Life On The Lawn" display
symbolised the number of injections and blood tests endured by a
person living with diabetes for 10 years.
Senator Patterson
told the children that "You have given the parliament and the
nation a message that we will not forget when we are considering
diabetes funding and research."
Kids In The
House was sponsored by Medibank Private and Qantas, with valued
support provided by Roche Diagnostics, Novo Nordisk, Aventis Pharma,
Rydges, Channel 7, AAP and Edelman.
JDRF, the
world's leading nonprofit nongovernmental funder of diabetes research
was founded in 1970 by the parents of children with juvenile diabetes
- a disease which strikes children suddenly, makes them insulin
dependent for life and carries the threat of devastating health
complications. Since its inception, JDRF has provided more than
US$600 million to diabetes research worldwide. JDRFs mission is
constant - to find a cure for diabetes and its complications through
the support of research.
For further information:
Karolyn Andrews,
Media & PR Manager, JDRF
Ph. 02 9966 0400 (x203) or 0403 787 077 | email: kandrews@jdrf.org.au
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